Sunday, February 24, 2013

Sunday Serenity #325

Us Summer 2011

I'm going to do something I rarely do here and post a full face picture of myself.  This in honor of the fact that all of my serenity and joy of the last week is wrapped up in what this pic represents.  It was taken of Ed and I at Rice Hill OR where he'd met my sister and I to transfer my stuff from her car to his Dad's car upon my return from the  May-August visit at Mom's in Longview.  When I'd gone for Mother's day and stayed for my niece's wedding in July and my sister Jamie's surgery in August.

Anyone following my blog this month will know that we nearly split the week of Valentine's but managed to stop the bleeding of our broken hearts before they bled out via some intense email exchanges.  Then this past Thursday my sister drove me down after more of my stuff I'm going to need for the extended stay at Mom's and Ed and I had some intense face-to-face encounters that began the healing process.

My extended stay in Longview is for tending to a health crisis brought on by loss of my meds after we lost health insurance through Ed's job.  So I'm staying here where my sister can be advocate, phone contact and chauffeur as I get the necessary help and until something can be established back home to carry it forward once I'm stabilized again.

I have mentioned my various health issues here in the past but do not dwell on them nor feature them very often.  I will break that tradition now as my life is becoming an exercise in getting healthy and independent so that I can step up as full and equal partner with my husband and I can't imagine continuing to blog daily if I try to keep all of this private.

For now I will just list the issues:

I'm legally blind due to Retinitis Pigmentosa aka RP aka Tunnel Vision. This is a degenerative eye disease that takes the night vision first (my teens) then a progressive loss of peripheral vision (my twenties with legal blindness reached by age 27) and finally encroaches on the central vision (I've lost so much of the central in my left eye I can no longer read with it and it is closing in on the right as well)

My blood pressure was in the range of 220/120 when I finally started treatment in 2006 which was life threatening not to mention the risk of stroke that could take language from me.  It took a combination of four meds to get it under control and since last August I'd been taking only one or two at any one time as we tried to stretch a month's supply into six weeks or two month's.

I have a mood disorder that includes severe anxiety issues especially social anxiety along with episodes of severe depression.  All of that accompanying severe insomnia to the point I often go days without sleeping at all or weeks with sleeping less than four hours at a time. And the when is all over the clock.  The artist of the cat naps I am.  I went off the meds for this last August and thought I was coping but apparently nobody else thought so and once this latest crisis hit it became obvious to me as well.  The clinic my sister took me to is going to screen me for bi-polar next month before restarting the meds which probably won't be the same ones as before as my sister mentioned that she didn't think they were all that excellent.

I am also overweight by maybe 60-70 pounds now.  I've lost about 50 in the last three years that has come off without going back on.  I've come down from a size 24/26 to a size 18/20.

Additionally I have dizziness and balance issues, joint pain, significant loss of hearing accompanied by loud ringing in the ears and a mouth full of rotten teeth.

My sister is actually excited about the prospect of getting my health overhauled.  I wasn't feeling real cooperative about it at first but am now on board.

1 tell me a story:

Jamie 2/24/2013 11:20 PM  

I am proud of you for opening up. Good job. I am also happy to see that you are getting physically and mentally healthy. Yes, I have been worried. I love you a lot and I know it is hard to open up and fight for you, but you are so worth the fight.

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